虎嗅

"Selling our property and spending millions of yuan, we traveled to Ukraine twice for stem cell therapy for our son with autism. In the end, all our efforts were in vain."

原文:卖掉房产、耗资百万,两赴乌克兰为自闭症儿子做干细胞治疗,我最终等来一场空

Summary of Key Points

Stem cell therapy for autism is still in the global research and exploration phase, with no clinically proven safety or effectiveness. However, commercialization has quietly begun in many countries. Many parents of children with autism, out of anxiety, blindly attempt expensive overseas treatments. For example, Tao Tao’s mother sold her house and borrowed nearly one million yuan to take her child to Ukraine for treatment, only to find that the results were temporary or ineffective, and it even led to the breakdown of her family. Experts have clearly stated that this therapy has no promise, and parents should let go of the obsession with a cure and choose scientific intervention methods.

1. Stem Cell Therapy for Autism: Research Just Beginning, Far from Being “Effective”

A study conducted by the Chinese People’s Liberation Army General Hospital in collaboration with the Shandong Cord Blood Bank involved 34 children aged 3-8 with autism (all having immune disorders) divided into two groups: 17 received umbilical cord blood stem cells, and 17 received a placebo, while both groups continued with rehabilitation interventions. After 13 weeks, the total scores on social interaction scales and cognitive sub-tests in the treatment group showed “statistically significant differences” compared to the placebo group. However, the paper only stated that the treatment was “initially safe” and “potentially effective”—this does not mean it has been proven effective!

Globally, all research on stem cell therapy for autism is still at the exploratory stage. It is not yet clear how stem cells affect autism (the mechanism is unknown), nor has it been demonstrated that they can stably improve core symptoms such as social barriers and repetitive behaviors. In short, current research is more like testing the waters, and there is a long way to go before stem cell therapy becomes a reliable treatment option for children.

2. Tao Tao’s Mother’s Million-Dollar Mistake: Selling Her House and Borrowing Money to Go to Ukraine

Tao Tao was diagnosed with atypical autism at 1 year and 9 months old, and her condition deteriorated at 2 years (with irregular sleep and irritability). Conventional interventions (such as transcranial magnetic stimulation, acupuncture, and play therapy) were ineffective. Desperate, she followed the advice of an intermediary and took her child to Ukraine for embryonic stem cell therapy at the EMCELL clinic in Kiev:

  • First attempt: She sold a property worth 400,000 yuan and borrowed 200,000 yuan for a total of 600,000 yuan. After the treatment, her child became more interactive and calmer, but the effects lasted only half a month before the symptoms returned.
  • Second attempt: Borrowing another 200,000 yuan during her divorce, she took her child to a public hospital in Ukraine, thinking it would be more authoritative. The additional painful rehabilitation massages had no effect. The nearly one million yuan spent resulted in the breakdown of her marriage, with no improvement in her child’s condition. This story reflects the experiences of many parents who try these treatments blindly.

3. Why Are Parents Easily Deceived?

The main reason parents are deceived is their anxiety. They are panicked by their child’s worsening condition, and online claims that autism is “incurable” and that conventional treatments are ineffective, leading them to desperately seek a “miracle cure.” Intermediaries take advantage of this:

  • Exaggerated promotion: They claim that embryonic stem cells are “miracle cells” that can repair nerves and promote development.
  • Misleading information: They suggest that such treatments are not possible in China due to ethical concerns but are “legal” in Ukraine.
  • Hidden risks: They do not mention that allogeneic stem cells may cause rejection, immune disorders, or even increase the risk of epilepsy and tumors.
  • Vague promises: They only provide testimonials from “famous people” or children with cerebral palsy, without any real before-and-after data from children with autism.

Tao Tao’s mother later realized that the stem cells used in the laboratory and clinical trials were not the same as the “miracle cells” sold by the intermediaries.

4. Experts and Regulation: No Approval Either Domestically or Internationally, No Promise for the Therapy

  • Expert opinion: Professor Zou Xiaobing from Sun Yat-sen University Third Hospital (an authority in autism research) stated that “infusing fat, bone marrow, or other stem cells into children with autism has no promise” because of the significant individual differences among children with autism, and the mechanism of how stem cells work is not understood. Simply infusing stem cells is unlikely to improve core symptoms.
  • Regulatory status: No stem cell therapy for autism has been approved in China. Although some countries like Japan have incentives for the industry, there is still no evidence of its effectiveness (treatment costs around 40,000 yuan per session in Japan, but this does not mean it is proven effective).
  • Risks: The introduction of allogeneic embryonic stem cells into the body may cause rejection reactions and immune system issues, posing unnecessary health risks to the child.

5. The Right Approach to Autism Intervention: Accepting the Child and Providing Scientific Support

After her mistakes, Tao Tao’s mother came to realize the following:

  • Let go of the obsession with a cure: She stopped focusing on when her child would be cured and instead focused on teaching him basic life skills, such as eating, dressing, and personal hygiene, to enhance his independence.
  • Change the approach to intervention: She used games and exercises that the child enjoyed, replacing forced training with a more playful approach.
  • Parents need to heal first: Anxious parents can pass on negative emotions to their children and make irrational decisions. Only by accepting the child’s current situation and maintaining a peaceful mindset can they provide proper, scientific support.

In conclusion, there is no shortcut to treating autism, and any claims of a quick cure are likely scams. The most reliable approach is for parents to accept their child and support their growth over time.

(Note: This article is based on Tao Tao’s mother’s account and does not constitute medical advice. Specific treatments should follow the guidance of a healthcare professional.)